Giving: A Core Part of Our Mission

Serving the rare disease community goes beyond developing precision genetic medicines. Sarepta is committed to providing support at every stage of a patient’s journey. Our partnerships with patient advocacy groups are fundamental to this work. 

We provide grants, donations, medical education support, and sponsorships to advocacy groups, nonprofit organizations, academic institutions, scientific and medical associations, continuing medical education providers, and other organizations across the spectrum of neuromuscular and rare diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company. 

Grants & Donations

Sarepta provides grant funding for programs that enable education, address unmet needs of rare disease patients, promote the highest standards of care, raise awareness of ongoing research, or focus on other critical community initiatives. 

Requests will be considered across the spectrum of neuromuscular and rare diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for the company. Applications are accepted on a rolling basis throughout the year and are generally reviewed monthly by the committee. Our team will review your request and contact you within 60 days of your submission. Requests considered may include those that support:

  • the communities Sarepta serves globally
  • programs and activities that seek to advance medical and disease education, and that address the unmet needs of patients
  • charitable causes and events that are of importance to the communities we serve
  • collaborative learning experiences through engagement with various stakeholders from the Duchenne community
  • programs that target a broad population of patients

Requests that typically cannot be supported may include:

  • funds that will benefit an individual or specific subset of the disease community
  • proposals for support of general education or programs if one of Sarepta’s disease areas of focus are not highlighted
  • programs that duplicate efforts that are actively ongoing in the community or that Sarepta has already supported

Download Application Checklist and Instructions

Click Here to Apply

If you have any questions about grants or sponsorships, please contact: [email protected].

Sponsorships

Sarepta sponsors programs and events that support, raise awareness, and advance education and scientific knowledge around rare diseases and the experience of patients living with those diseases. 

Sarepta’s funding priorities include support programs that focus on neuromuscular and rare disorders, with priority on Duchenne muscular dystrophy and limb-girdle muscular dystrophy. Applications are accepted on a rolling basis throughout the year and are generally reviewed monthly by the committee. Our team will review your request and contact you within 60 days of your submission.   

How to apply:

Application Checklist and Instructions

Click Here to Apply

Sponsorship applications must include a list of the benefits for each funding level.

If you have any questions about grants or sponsorships, please contact [email protected].

Fellowships

We are committed to developing precision genetic medicines aimed to improve and extend the lives of patients with rare genetic-based diseases. We know we can’t accomplish this mission alone.

Our funding opportunities aim to provide support to those who will be working urgently in this fight.

Sarepta’s Annual Grant Program for Neuromuscular Fellowships is available to iInstitutions in the United States that are interested in 1-year funding to support a Genetic Counselor, Physician, Nurse Practitioner, or Physical Therapist Fellow. The funding is intended to support Fellowship programs in 2021-2022.

The application portal is now open through November 15th, 2020. Please complete the application via the link below and upload a cover letter describing the type of fellowship, an overview of the fellowship program (e.g., clinical setting, program curriculum, key faculty mentors, etc.), previous or current experience with fellowship programs, and any additional supporting information. 

Application Checklist and Instructions

Click Here to Apply

If you have any questions about fellowships, please contact: [email protected]

Investigator-Initiated Studies

We are fully committed to developing precision genetic medicines aimed at improving and extending the lives of patients with rare genetic-based diseases. Part of that commitment is recognizing the potential of independent, unsolicited research to enhance understanding of the disease areas of interest to us.  We would like to hear from individual researchers, institutions, or groups looking for funding or material for a clinical or preclinical study in rare or neuromuscular disease.

Applications are reviewed monthly. Our team will review your request and contact you within 60 days. 

If you have any questions, please contact [email protected] 

Apply now:

Application Checklist and Instructions

Apply now

Medical Education Grants

Sarepta is dedicated to supporting high-quality independent medical education programs in our areas of strategic focus. We look for programs aimed at improving diagnosis and disease management and, ultimately, patient outcomes. Grants supporting conferences, seminars, and meetings may be awarded to academic medical centers, medical education companies and medical specialty societies.

We accept grant applications on a rolling basis throughout the year and generally review them monthly. Our team will review your request and contact you within 60 days of your submission.  

How to apply:

Application Checklist and Instructions

Click Here to Apply

If you have any questions about grants or sponsorships, please contact: [email protected].

Route 79, The Duchenne Scholarship Program

route 79Route 79, The Duchenne Scholarship Program is designed to help students diagnosed with Duchenne muscular dystrophy pursue their post-high school educational goals.

There are 79 exons in the dystrophin gene impacted by Duchenne, and the route traveled by every person with Duchenne is distinct. Sarepta’s goal through this program is to acknowledge and support individuals with Duchenne who are mapping out their future via educational pursuits.

Additional information is available here.