Newsroom

Many people can relate to the experience of learning something isn’t right with your health, working with doctors to run tests and finally getting results in a few days or even weeks. In almost all cases that waiting period is described as stressful and even excruciating. That period of not knowing what’s wrong can make days feel like years, the whole time your mind racing with possibilities. Now imagine having to wait five years. This was the case for 16-year-old Julianna. What began with a seemingly mundane foot injury, resulted in a years-long journey to her limb-girdle muscular dystrophy diagnosis. Today, despite the many challenges she has faced, Julianna focuses on using her experience to help others dealing with an LGMD diagnosis.