How Patients Guide Our Work

At Sarepta, our work extends beyond the research and development of medicines.  We’re also committed to engaging with and supporting the rare disease communities that we serve by providing patients and their families educational resources and information through advocacy and educational programs.

Our Patient Affairs team understands the value of direct conversation and engagement with advocates and members of rare disease communities around the world. Each day, the team strives to represent the many voices of the patient communities we serve.

Meet Sarepta’s Patient Affairs Team

Siobhan Fitzgerald
Siobhan Fitzgerald
Senior Director, Patient Affairs
Caroline Daly
Caroline Daly, Masters HRD
Director, Patient Affairs, Europe & Israel
Allison Kreuzer
Allison Kreuzer, PhD
Associate Director, Patient Affairs
Hannah Rosenberg
Hannah Rosenberg, MSc
Manager, Patient Affairs, US & Canada
Ana Clara Segura de Azevedo
Ana Clara Segura de Azevedo
Manager, Patient Affairs, Brazil
Tamara Wyzanski
Tamara Wyzanski, MPH
Senior Manager, Patient Affairs

Educational Websites

View a variety of websites to educate patients, families and healthcare providers about Duchenne muscular dystrophy, limb-girdle muscular dystrophy, mucopolysaccharidosis Type IIIA (MPS IIIA), and Charcot-Marie-Tooth (CMT).

route 79

Route 79, The Duchenne Scholarship Program

Route 79, The Duchenne Scholarship Program, was created to support the post–secondary educational goals of students living with Duchenne. The scholarship is named after the 79 exons in the dystrophin gene impacted with Duchenne. 

Connect With Us

Whether you have been diagnosed with one of the disease areas that we support, or you are a representative of a patient advocacy organization, we look forward to connecting with you.

Use our contact us form to connect with the Sarepta Patient Affairs team.