At Sarepta, our work extends beyond the research and development of medicines. We’re also committed to engaging with and supporting the rare disease communities that we serve by providing patients and their families educational resources and information through advocacy and educational programs.
Our Patient Affairs team understands the value of direct conversation and engagement with advocates and members of rare disease communities around the world. Each day, the team strives to represent the many voices of the patient communities we serve.
Watch this video to hear Siobhan Fitzgerald, Executive Director, Patient Affairs, explain the role of our Patient Affairs team and the sense of urgency that drives them.
Here we share updates with the community about relevant events and topics.
If you have other questions or topics you'd like to see addressed, please contact [email protected]
Each member of our Patient Affairs team brings passion, energy, and a deep commitment to their work every day. Whether located at our U.S. headquarters in Cambridge, Massachusetts or one of our locations in Europe, each team member is dedicated to addressing the needs of patients with serious medical conditions.
To connect with a member of our Patient Affairs team, please email [email protected]
View a variety of websites to educate patients, families and healthcare providers about Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and Charcot-Marie-Tooth (CMT).
Route 79, The Duchenne Scholarship Program, was created to support the post–secondary educational goals of students living with Duchenne. The scholarship is named after the 79 exons in the dystrophin gene impacted with Duchenne.
Whether you have been diagnosed with one of the disease areas that we support, or you are a representative of a patient advocacy organization, we look forward to connecting with you.
Use our contact us form to connect with the Sarepta Patient Affairs team.