How Patients Guide Our Work

At Sarepta, our work extends beyond the research and development of medicines.  We’re also committed to engaging with and supporting the rare disease communities that we serve by providing patients and their families educational resources and information through advocacy and educational programs.

Our Patient Affairs team understands the value of direct conversation and engagement with advocates and members of rare disease communities around the world. Each day, the team strives to represent the many voices of the patient communities we serve.

Community Communications

Here we share updates with the community about relevant events and topics.

If you have other questions or topics you'd like to see addressed, please contact [email protected]

Meet Sarepta’s Patient Affairs Team

Siobhan Fitzgerald
Siobhan Fitzgerald
Executive Director, Patient Affairs
Caroline Daly, MS Psychology
Senior Director, Patient Affairs, EU & Israel
Hannah Rosenberg
Hannah Rosenberg, MSc
Senior Manager, Patient Affairs
Tamara Wyzanski
Tamara Wyzanski, MPH
Associate Director, Patient Affairs
Kate Pecora
Kate Pecora
Manager, Patient Affairs
Headshot of Rachael Titus
Rachael Titus
Specialist II, Patient Affairs
Katherine Sinars headshot
Katherine Sinars
Coordinator, Patient Affairs
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Nicole LaMarca, DNP, MSN, CPNP, PMHS
Senior Director, Patient Affairs

Educational Websites

View a variety of websites to educate patients, families and healthcare providers about Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and Charcot-Marie-Tooth (CMT).

route 79

Route 79, The Duchenne Scholarship Program

Route 79, The Duchenne Scholarship Program, was created to support the post–secondary educational goals of students living with Duchenne. The scholarship is named after the 79 exons in the dystrophin gene impacted with Duchenne. 

Connect With Us

Whether you have been diagnosed with one of the disease areas that we support, or you are a representative of a patient advocacy organization, we look forward to connecting with you.

Use our contact us form to connect with the Sarepta Patient Affairs team.