Thank you for your interest in Sarepta Therapeutics!  

We’ve created social media communities to engage with the community, foster discussion and learn about your experiences.   

When visiting, commenting, or posting on Sarepta social media channels, there are a few things you should know:  

  • We welcome the opportunity to hear from you via mentions, comments, messages, and replies, however, we would like to remind you that healthcare is a highly regulated space. As such, we are unable to engage in sensitive topics, or discussion(s) about treatment options – Sarepta’s or competitors’— on social media.   

  • Social media accounts that Sarepta follows or is followed by are not an indication of Sarepta’s endorsement of these accounts or the content they produce.   

  • All user generated comments including visuals, videos and other types of material posted by followers do not necessarily reflect the opinions of Sarepta, its employees or affiliates. 

  • We look forward to an open communication with you; however, as you participate on our social media communities, please keep the following things in mind:  

Comments Seeking or Containing Medical Advice  
Please remember that this is not an official outlet for medical advice and is not intended to act as a replacement for advice from your doctor. Sarepta Therapeutics does not provide medical diagnosis, treatment or otherwise engage in the practice of medicine, and information on our social media communities should not be considered medical advice. If you are experiencing a medical problem, please consult a health care professional for diagnosis and treatment.  

Comments or Questions About Therapies and Treatment Options  
If you post a comment or question related to a therapy or treatment option, we may have to delete the conversation and/or reach out to you offline to gather more information.  

Comments That May Involve a Potential Product Complaint or Adverse Event  
As a pharmaceutical manufacturer, we strive to develop treatment options that are safe.  We take product safety seriously. If you share a product complaint or an adverse event relating to our treatment options, we are required to record your comments and handle them in a specific manner so the event is properly documented.  

If you or your child has possibly experienced a side effect from a Sarepta product, please contact your healthcare provider and Sarepta at 1-888-727-3782 or by email at [email protected].  

You are also encouraged to report side effects to the FDA. To do so, visit www.fda.gov/safety/MedWatch/default.htm or call 1-800-FDA-1088 (1-800-332-1088).  

If a comment infers that there may be a problem with our treatment, we may also contact you to investigate the nature of the complaint according to our company’s policies.  

Healthcare Professionals  
If you are a healthcare professional and have customer service questions or concerns, contact our Medical Information team at 888.727.3782, option 2.  

Patients or Caregivers  
If you are a patient and have questions or concerns, contact SareptAssist for inquiries related to Sarepta’s U.S. FDA-approved therapies, questions about continuation of therapy, and insurance and reimbursement matters. Contact SareptAssist Patient Support at 888.727.3782.  

Vulgarity  
Sarepta wants to provide a respectful and welcoming community for all and may remove comments that use profanity, hate speech or other offensive language.  

Third-Party Links 
Links to non-Sarepta websites, social accounts or other third-party locations do not necessarily reflect an endorsement of those properties or organizations. 

Comments That Are Off-Topic  
We want it to be easy for our followers to find relevant and useful information. Sometimes comments are posted that are off-topic, make unsupported accusations or claims, contain misleading information, promote the buying and selling of goods or services or spam. We reserve the right to remove these comments if they deter from our community’s intent.  

Comments Containing Personally Identifiable Information  
We may remove comments or posts that contain personal information about you or someone you know, including phone number, address, email, date of birth, or other personally identifiable information. It may be better instead for us to have a private dialogue about your issue through email, private message or telephone conversation.  

Thank you for reading the community guidelines and for following Sarepta.  We look forward to engaging with you on social media.