The path to a diagnosis of limb-girdle muscular dystrophy (LGMD) is often long and can involve multiple years of frustrating experiences. Many people living with LGMD are assigned a diagnosis of LGMD based on their symptoms, have not been offered genetic testing, or have a need for updated genetic testing.
Sarepta is introducing this LGMD Grant Award Program, an effort aimed to shorten the LGMD diagnostic journey and/or enhance participation in existing genetic testing programs. The goal of our efforts is to ultimately offer long-term impact for families, such as earlier access to specialized care, increased clinical trial participation, and improving access to potential future treatments for the LGMD community. The LGMD Grant Award Program is global in nature, and Patient Advocacy Organizations or non-governmental organizations from any country are welcome to apply.
Sarepta will grant monetary awards so that patient advocacy organizations or non-governmental organizations may implement their proposals. If you are a member of the LGMD community and have a great idea, please partner with a patient advocacy organization to submit an application! Up to $100,000 United States Dollars (USD) will be awarded, and the number of awardees will be determined by the selection committee to optimize the available funds.
Applications may be submitted between May 5, 2022 and September 5, 2022. The application window will close at 11:59p.m. PDT.
This website page is intended for U.S. audiences.
Applications addressing the following areas will be considered:
This grant program is seeking applications that support earlier LGMD diagnosis and/or increased participation in established genetic testing programs. Proposals must be original, meaningful, and should include ways to address one or more of the following areas:
This grant program is designed to award patient advocacy organizations and non-governmental organizations with funds to support their proposed initiatives. We hope that individuals who are inspired with an idea will choose a non-profit partner. If you need help choosing a partner, please reach out to [email protected] to brainstorm. Similarly, we hope that non-profit organizations will challenge members of your community to come up with an idea and partner with you to make an impact in your region!
These and other criteria will be evaluated by the grants committee:
*Additional criteria will apply, please see FAQ for more detail